Classroom Modifications for EDS Students
Physical Adaptations for Kids with Ehlers Danlos Syndrome
Nov 25, 2008
Ehlers Danlos Syndrome is a connective tissue disorder that can result in loose joints, easy bruising and pain as well as other symptoms. A student with EDS might have to modify what would be otherwise typical child activities. In school, this could result in needing to carry less weight, having difficulties writing with a pencil or pen or even having limitations for physical education classes or on the playground. In any of these cases the teacher becomes a valuable resource for parents and physicians to further understand how the child is being affected by the syndrome.
Backpacks and Books
Weak joints can make carrying books and backpacks difficult. The weight can not only be painful but may cause joints to sublux or even dislocate. It can also increase the amount of musculo-skeletal pain being experienced by the child.
Students with EDS benefit from having fewer books to carry during the day or to and from school. Options include having two sets of books, one at home and one in the classroom, or having an electronic version of the text for use on a computer or other electronic device.
Handwriting Problems
Children with EDS can have a variety of problems that interfere with producing legible handwritten work. Loose joints in the fingers can bend backwards with minimal pressure. Painful cysts can form in the wrists, minimizing movement. These students can still learn to write, but some with extreme difficulties would benefit from some classroom modifications.
Modifications that can be enacted to help can be as simple as providing notes and minimizing the need for handwriting assignments. Another would be allowing the use of a laptop with voice recognition software. Students would also benefit from a recording of lecture or assignment explanations so these can be replayed when needed or if they are absent due to a hospitalization or prolonged period of pain.
Physical Activities
Due to their extreme flexibility, young children with EDS can be athletic, but need to take precautions to not injure their joints or soft tissue. Since EDS varies so much between patients it is important to communicate with parents and have the student’s physician inform the school of any limitations or suggest modifications to put in place. In some cases students will be allowed to fully participate in sports and gym but the teacher may be informed of problems to watch for or special steps to take in case of an injury.
Children with EDS are somewhat more physically fragile than their peers. Communication between teacher and parents as well as modifying physical activities and expectations to fit the student’s needs are key components to assisting students with EDS while they are at school.
Reference: Ehlers Danlos National Foundation
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